DNA Banking

If genetic testing is performed but does not identify a harmful genetic variant, or if testing is declined for any reason, DNA banking is another resource available to ensure the ability for future genetic testing of one’s DNA. This is primarily for the benefit of family members, and can allow for the most informative genetic testing and interpretation in the family (since it is always recommended to start testing in a family member who has had the cancer of concern). DNA banking is available through many laboratories throughout the country at relatively low cost, and can be facilitated by your genetic counselor or other providers. If you pursue DNA banking, it is important that you keep copies of the paperwork and inform your family members of this resource for them.

Click here to learn more about scheduling a genetic counseling appointment for questions about hereditary cancer predisposition.

Additional Resources

*Positive Results Facebook Group
Genetic Support Foundation hosts a Facebook group for Hereditary Cancer Support and Resources. Get trusted information and join a community of support.
*Cascade Screening Connector
Genetic Support Foundation has partnered with the Washington State Department of Health to provide cascade screening to help people identify and contact family members who may have an increased chance of developing cancer. 
*FORCE (Facing Our Risk of Cancer Empowered) 
The FORCE mission is to improve the lives of individuals and families facing hereditary cancer. Resources include peer navigation and expert-reviewed information. 
*AliveAndKicknAliveAndKickn is a nonprofit working to improve the lives of individuals and families affected by Lynch Syndrome and associated cancers through research, education, and screening. 
*Health Experiences USAThis national research project brings patient voices into the healthcare experience and features video clips of people facing hereditary cancer. Individuals from a variety of backgrounds share both positive and negative experiences about living with hereditary cancer. 

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Last updated on Dec 31st, 2020

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